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Re: Puzzled??
They aren't standard treatment because they have not been successful enough. They started with the original vaccine, but it didn't produce enough of an immune response, so then they started trying adding in other drugs to boost it.
When I did my trial, they added in, I think it was called ampligen. This was not successful, as a whole, even though I think it was for me, as I have been Ned from liver mets for almost 5 years. Now, I see they are adding in a mushroom tea. Hopefully, they will find the right combination that produces good enough results to start more widespread testing.
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diagnosed stage 2- 3/2005
4.5 cm & 2+ nodes , er/pr- & HER2+
4 AC
12 taxol/Herceptin
Year of Herceptin
liver mets- July-2010
7 taxotere/Herceptin
RFA- Feb.2011
NED
U of Wa vaccine trial-oct 2011-Feb 2012
Herceptin/tykerb
Ned - 2 1/2 years
Herceptin & perjeta
Ned 3 years
Herceptin- reducing treatments , due to s/e, to 5-6 a year
NED- 3 1/2 years
Ned - 4 years
2/15- stopped herceptin - on no treatment
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