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Old 10-16-2012, 06:23 PM   #2
KaiM
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Join Date: Oct 2011
Posts: 59
Re: 11 Years bc, 10 Year with mets

Shays mom,
What a wonderful post, thank u so much for sharing! I was diagnosed a year ago with mets from the get go, my second child was just three months old. I was so scared I wouldn't even live to see him turn one, but here I am a year later feeling better than I have in years! I know that this disease can turn on me at any time, but I have to live my life with hope that I will be around to raise my children. I choose to live my life with hope because the alternative is just too devastating.
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9/11 - dx 3 mnths after giving birth to my 2nd child. (not a clogged milk duct) ER/PR- HER2+++
10/11 - Initially staged at 2b after unilateral mastectomy
11/11 - CT scan 4 weeks later found spots on bones and liver (crap!) Stage 4
12/11 - starting TCH
5/12 - STABLE. stoping TCH after 6 months and continuing Herceptin with Tykerb and Xgeva
8/12 - STABLE, but I'm calling it NED because all they see is bone scaring!
11/12 - STABLE
2/13 - STABLE
6/13 - STABLE
9/13 - STABLE
12/13 - STABLE
3/14 - STABLE
6/14 - STABLE
9/14 - STABLE
12/14 - STABLE
...Continue Herceptin and daily Tykerb and scans every 4 months
1/16 - STABLE
11/18 - Five level spinal fusion from collapsing vertebrae due to spinal Mets/radiation
12/19 - STABLE
Mom to Audrey (12 yrs) and Hudson (8)

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