HER2 Support Group Forums - View Single Post - Risk of Recurrent Disease in HER2-Positive Patients

Becky · 03-12-2010, 01:44 PM

Due to extensive research, it is why I got an oophorectomy to take an AI - Tamoxifen was just a bad actor especially if low to moderate positivity or just being ER+ but PR neg.

I also took Herceptin longer although still only on an AI now. That begs the question for me as in a couple of months, I will hit my 5 years on the AI (of which about 4 years were alone without Herceptin). I am wondering if I should stay on the AI if offered to me or not due to the possible stronger awaking of Her2???

Who knows. I am 5 1/2 years from surgery and still ok!?

03-12-2010, 01:44 PM	#8
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	Re: Risk of Recurrent Disease in HER2-Positive Patients Due to extensive research, it is why I got an oophorectomy to take an AI - Tamoxifen was just a bad actor especially if low to moderate positivity or just being ER+ but PR neg. I also took Herceptin longer although still only on an AI now. That begs the question for me as in a couple of months, I will hit my 5 years on the AI (of which about 4 years were alone without Herceptin). I am wondering if I should stay on the AI if offered to me or not due to the possible stronger awaking of Her2??? Who knows. I am 5 1/2 years from surgery and still ok!? __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"