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Old 04-21-2007, 08:23 PM   #7
Odette
Senior Member
 
Join Date: Apr 2007
Location: Shaker Heights, Ohio
Posts: 86
Angry Tykerb after progression on Herceptin

Hello Kim,

The reason my oncologist is putting me on Tykerb/Xeloda is that I had progression on Herceptin. I only had about 4 months on Herceptin and I had the recurrence in the neck. Now, I had radiation for that, which was successful, (so officially I have no measurable disease) but my second opinion doctor at MSKCC recommended this as a preventive measure.

At first my local oncologist was totally against it (it is not standard procedure) but since I got a third opinion which also said that Tykerb and Xeloda MAY BE helpful, he is OK with it now. I still hate the thought of another summer on chemo though.
Now waiting on my insurance approval it's been a week or so.

Kim, I understand your question but probably there is no one in the world that can see into the future whether you would be better off taking the T drug or not? Maybe you will never have a recurrence ever again! It is great that Herceptin worked so well for you!
Do you go to a place for second opinion?

Heaps of luck, best wishes, prayers,

Odette
__________________
May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment

'One does not get to choose one's adventures'

I'm experimenting with my diet, using green tea, flax seed curry and olive oil

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