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Andrea Barnett Budin · 02-10-2014, 05:10 PM

Oh yes, Taxotere and legs of lead. I shuffled when I walked. Couldn't lift my legs. Kept stumbling. Couldn't lift my feet, so the toe of the shoe would get caught. Also my arms had deep muscle pain.

L-CARNITINE 500 mg -- on an empty stomach -- 2 x a day
CO-ENZYME Q10 -- 150 mg w/a meal 2 x a day
ALPHA LIPOIC ACID -- 300 mg w/a meal 2 x a day

This helps a lot.

It took a long while for that to subside with me, but these supplements surely helped!

I had major tearing of the eyes. Forever clutching a tissue. Kept a ziploc in my bag full of wet tissues. After 5 ophthalmologists I was told I had really really dry eyes. Meaning -- take eye drops (without preservatives) and use HOURLY! Annoying but most effective! Relief. No more burning (like there are slivers of glass in my eye), itching, tearing...

I use Bausch & Lomb's individual vials (28 to a box) of SOOTHE. After a few wks, I could move to every 2 hours and on and on. I STILL after all these years use the drops first thing in the A.M. and last thing at night. If I go to the bathroom in the middle of the night, I have to use drops. I keep the vials everywhere!

Maybe the little tics will stop.

Of course B12 concentrated METHYL COBALAMINE is excellent for nerve repair.

I sure hope you soon feel better and better Love! It'll definitely get better.

02-10-2014, 05:10 PM	#4
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Re: Muscle pain and weakness Oh yes, Taxotere and legs of lead. I shuffled when I walked. Couldn't lift my legs. Kept stumbling. Couldn't lift my feet, so the toe of the shoe would get caught. Also my arms had deep muscle pain. L-CARNITINE 500 mg -- on an empty stomach -- 2 x a day CO-ENZYME Q10 -- 150 mg w/a meal 2 x a day ALPHA LIPOIC ACID -- 300 mg w/a meal 2 x a day This helps a lot. It took a long while for that to subside with me, but these supplements surely helped! I had major tearing of the eyes. Forever clutching a tissue. Kept a ziploc in my bag full of wet tissues. After 5 ophthalmologists I was told I had really really dry eyes. Meaning -- take eye drops (without preservatives) and use HOURLY! Annoying but most effective! Relief. No more burning (like there are slivers of glass in my eye), itching, tearing... I use Bausch & Lomb's individual vials (28 to a box) of SOOTHE. After a few wks, I could move to every 2 hours and on and on. I STILL after all these years use the drops first thing in the A.M. and last thing at night. If I go to the bathroom in the middle of the night, I have to use drops. I keep the vials everywhere! Maybe the little tics will stop. Of course B12 concentrated METHYL COBALAMINE is excellent for nerve repair. I sure hope you soon feel better and better Love! It'll definitely get better. __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...