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Cat · 05-12-2013, 07:14 AM

Hi!
Keep in mind everyone will respond a little different to txs.
I've had 2 infusions so far and due again next thur. I had headaches last wk of first infusion but may have been neck/pillow issues. I had minor nausea on and off. Fatigue maybe a little but I don't have little ones anymore and that alone can give you fatigue! I have had shortness of breath but I'm also dealing with a pleural effusion. My blood work was checked 1 wk and again 5 days later. Platelets went down and back up and liver enzymes went up and down. I asked my onc at the worst if I could have receivedtx and he said yes. This time no blood work in between so I don't know where I'm at right now. I've heard SIs decrease with time but even if they don't I can function very well like this. I drink lots of water and stay hydratedand feel that has helped a lot in all txs.
Keep the faith and keep us posted.
Cathy

05-12-2013, 07:14 AM	#11
Cat Senior Member Join Date: May 2010 Posts: 184	Re: kadcyla side effects Hi! Keep in mind everyone will respond a little different to txs. I've had 2 infusions so far and due again next thur. I had headaches last wk of first infusion but may have been neck/pillow issues. I had minor nausea on and off. Fatigue maybe a little but I don't have little ones anymore and that alone can give you fatigue! I have had shortness of breath but I'm also dealing with a pleural effusion. My blood work was checked 1 wk and again 5 days later. Platelets went down and back up and liver enzymes went up and down. I asked my onc at the worst if I could have receivedtx and he said yes. This time no blood work in between so I don't know where I'm at right now. I've heard SIs decrease with time but even if they don't I can function very well like this. I drink lots of water and stay hydratedand feel that has helped a lot in all txs. Keep the faith and keep us posted. Cathy __________________ 3/06 DX stage III er-pr-her2+++ breast, 1+node age 49 and 364 days 3XAC 4X taxol and herceptin continue herceptin one year bilat mastectomy w/TRAM 32 rads 9/08 recurrance 4 sternal nodes mediastinoscopy, able to remove 3 taxotere, carboplatin, herceptin, x6 continue herceptin indefinately 5/10 recurrance in same node/area mediastinoscopy, removed nodes added tykerb 27 rads 10/18/10 PET shows inflammation no active disease 8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node. D/C xeloda due to toxicity 12/5 PET scan clear 2/2012 colon blockage, breast cancer (never thought it could go there! thought I was constipated) start abraxane, herceptin, continue tykerb 10/2012 Kidney ablation (renal CA!) 3/2013 CT and biopsy R kidney (BC met to R kidney) 4/4/2013 Begin Kadcyla 7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm Sept 4-6 post op cyberknife Sept 23 ablation right kidney (blow up pesky breast ca met) Oct headaches MRI Oct 10 (only surgical changes ! Yay!) Short of breath. CT, pulmonary function, echo New crap in right lung heart good. Pooh! 12/13 DC kadcyla. Begin halaven 2/14 MRI brain NED Yay! 4/3/14 CT mostly stable but breast mets r kidney growing 4/16/14 ablation right kidney again Continue halaven, tykerb dc halaven gemzar? 2nd opinion May 14