HER2 Support Group Forums - View Single Post - Is Herceptin working and the need for scans

My onc did not order scans unless I reported a symptom. You can see from my signature...I did have a few symptoms. Sometimes it is hard to distinguish an ache and pain from cancer! That part is maddening to me! The scans themselves, especially CT's have risks because of raditation.

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DX November 2010
Brain MRI, CT of lung, liver, bone, all clear
Double Mastectomy w/expanders December 1, 2010
ER- PR- Her2+++, grade 3, 12 positive nodes out of 15
Stage IIIc
Started TCH/Chemo December 31, 2010
6 rounds TCH
Herceptin every 3 weeks for a year
33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area
September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer
Expanders removed, implants in Dec 1, 2011
Finished Herceptin, December 21, 2011
August 2012, CT of chest and abdomen, all ok
Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota
March 2013, First Vaccine
April 2013, 2nd Vaccine
May 2013, 3rd Vaccine
June 2013, 4th Vaccine
July 2013, 5th Vaccine
August 2013, 6th Vaccine Done!
September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal.
January 31, 2013, Mayo visit, Echo normal
February 23, 2014, Numb lips on right side, Brain MRI, normal!
June, 2015, Finished the trial at Mayo Clinic. Feels good!

04-10-2014, 07:50 AM	#3
JillaryJill Senior Member Join Date: Aug 2011 Posts: 271	Re: Is Herceptin working and the need for scans My onc did not order scans unless I reported a symptom. You can see from my signature...I did have a few symptoms. Sometimes it is hard to distinguish an ache and pain from cancer! That part is maddening to me! The scans themselves, especially CT's have risks because of raditation. __________________ DX November 2010 Brain MRI, CT of lung, liver, bone, all clear Double Mastectomy w/expanders December 1, 2010 ER- PR- Her2+++, grade 3, 12 positive nodes out of 15 Stage IIIc Started TCH/Chemo December 31, 2010 6 rounds TCH Herceptin every 3 weeks for a year 33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer Expanders removed, implants in Dec 1, 2011 Finished Herceptin, December 21, 2011 August 2012, CT of chest and abdomen, all ok Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota March 2013, First Vaccine April 2013, 2nd Vaccine May 2013, 3rd Vaccine June 2013, 4th Vaccine July 2013, 5th Vaccine August 2013, 6th Vaccine Done! September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal. January 31, 2013, Mayo visit, Echo normal February 23, 2014, Numb lips on right side, Brain MRI, normal! June, 2015, Finished the trial at Mayo Clinic. Feels good!