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Old 09-22-2009, 08:56 PM   #451
DianneS
Senior Member
 
Join Date: Aug 2008
Posts: 327
Re: Please post your two cents on Herceptin "side effects" real or perceived!

Diarrhea more frequent around herceptin infusion. Runny eyes, drippy nose but not all the time. Leg muscles more fatigued than usual after walking (but I did 2 hr hike today) lower leg/knees/ankle feel sore or puffy or something. My feet hurt first thing in the a.m. until I get moving around.

Hot flashes! Is this associated with herceptin? I was wondering. I am postmenopausal since bilat oophorectomy Feb. 2008. How long do these hot flashes last? I am not taking any Taxoxifen or AI's that might cause it.

Oh yeah. Occasional cough - from drippy nose?

Also my eyelashes are growing towards my eye on my right eye. I have had to have the doc tweeze them out more than once. It's only about 4-6 eyelashes but I never had this before chemo/herceptin. They are recommending I get the offending lashes lasered to kill the follicle. Chemo: the gift that keeps on giving.

Dianne
__________________
Three years and 5 months NED
Dx: Aug 2008 right breast IDC with 50% of tumor DCIS, Stage II or IIA, tumor size: 2.1 cm
Grade 3
8/9 Richardson/Bloom test
ER+ weakly positive
Alred Score: 4 (suggesting I would strongly benefit from hormone therapy)
PR-,
HER2 positive +++
No vascular invasion
No lymph nodes involved
Surgery: Sept. 9, 2008 -Modified radical mastectomy, right breast. I chose to have a simple mastectomy on the left. Began Taxotere/Carboplatin/Herceptin November, 2008. Finished T/C March 2009. Finished #16 Herceptin Sept. 09. AI's and Tamoxifen made me sick. Began natural Tamoxifen which is Quercetin, I3C and a combo of other supplements. I am also a DES Daughter. There is now a link between DES exposure in utero and breast cancer!

Last edited by DianneS; 09-22-2009 at 09:01 PM.. Reason: shorten post
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