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Re: Calling all stage iv sisters
Gosh, I haven't been on the forum in a while, I have been very busy with work as usual! I quit my job and opened my own business last fall after a nasty incident involving my past employer and my health privacy rights.
Still here, working about 65 hours a week and going strong!!
I take Tykerb every day (sometimes give myself a day or two off) and no tumor markers. Just scans every 9 months or so.
What a wonderful bunch of ladies we have here!
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4/06 Found small lump, biopsy + at 34 yrs.
5/06 Diagnosed IIIC, lumpectomy, 11/11 nodes HER2+
6/06 port placed. 4 Ad/Cyt and 4 Tax.
11/06 bilateral mastectomy
12/06 begin Rads
1/07 Finished Rad-started H, weekly for one year.
1/08. Finished H, scan showed activity in nodes, Doc says 'not to worry about it' and sends me on my way.
7/08 Scan shows numerous involvement in armpit, also large active nodes in supr. clav.
Doctor refused to give me HER2 meds.
8/08 fired doctor, found another. Started Tykerb/Xeloda. After one round, nodes are shrunk and normal sized!
12/08 NED continue Ty/X
3/09, 6/09, 9/09, 11/09, all scans show NED
Dropping X, continue Tykerb
As of 6/10, 3/11 still negative, continuing Tykerb...
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