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Midwest Alice · 02-08-2009, 08:15 AM

I went to the IBC clinic at M D Anderson. My at home onc is excellent and I now have Dr. Cristofanilli added to my team.
Dr. Cristofanilli has over 175 IBC patients from all over the world. This is where its happening!

If you have IBC call them. They will have you send all your records to Dr. Cristofanilli. He personally looks them over to see if he will take you. He said he really needs newly dx patients but he took me and I am almost a year out.

The more of us who go there the more information the researchers will have and the closer we get to new treatments and a cure.

I do my treatments at home and go to MDA and see Dr. C every 3 months.

If you have questions post or send me a private message.

Keeping the faith

02-08-2009, 08:15 AM	#1
Midwest Alice Senior Member Join Date: Dec 2008 Location: Southern Indiana Posts: 455	Go to the IBC clinic at M D Anderson I went to the IBC clinic at M D Anderson. My at home onc is excellent and I now have Dr. Cristofanilli added to my team. Dr. Cristofanilli has over 175 IBC patients from all over the world. This is where its happening! If you have IBC call them. They will have you send all your records to Dr. Cristofanilli. He personally looks them over to see if he will take you. He said he really needs newly dx patients but he took me and I am almost a year out. The more of us who go there the more information the researchers will have and the closer we get to new treatments and a cure. I do my treatments at home and go to MDA and see Dr. C every 3 months. If you have questions post or send me a private message. Keeping the faith __________________ Alice 04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53 06/08, 4 A/C, Neulasta 08/08, Herceptin/tax 12 every week 10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks 11/08 33Rads; 12/08 MUGA 48 2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove 4/09 Brain MRI - CLEAR; MUGA 54 7/09 chest ultrasound, 10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!! 1/11 Hip replacement 7/11 Hip 2 replacement 4/12 4 years!! Herceptin 6/12 start reconstruction finish in 12/12 2/14 Herception - 6 years!!! 1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you can stand up under it."