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Old 10-04-2015, 04:38 PM   #19
Dakini52
Senior Member
 
Join Date: Jan 2010
Location: Edmonds, WA
Posts: 202
Re: Hello from Colorado

Hi amy! So happy to see an update from you. I have thought of you often and am delighted to know that you are doing better in Colorado. I have started having lung issues recently and am wondering if it is being on Herception for going on 6 years, however, you have made me pay a lot closer attention to my surroundings to be sure nothing is lurking there. Thanks for your always helpful point of view. I hope Colorado continues to be a healthy place for you to live. I sometimes wonder about the wetness I live in in the Seattle area and think of moving to someplace dryer. Maybe it would be a good idea. Please continue to keep us posted on your progress.
Debbie
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Diagnosed June, 2006 HER2+++, ER- PR-, Grade 3, Stage IIB. Modified radical mastectomy, radiation, chemo, Herceptin, Tykerb 1 year. [*]In remission until 2/2010. Small tumor detected on chest wall during routine scan. 2/2010 surgery to remove tumor, started Herceptin/Tykerb, follow up radiation. [*]12/26/2010 - Off Tykerb due to allergic reaction[*]12/16/2014 - Have continued on Herception for almost 5 years now and remain NED. Discussion with onc re adding Perjeta to the Herceptin as another way of preventing recurrence. Still in discussion phase. 12/26/14 Onc applying for approval for Perjeta.
Perjeta approved and I received one infusion. It had an immediate impact to my lungs and I experienced difficulty breathing so.....I'm going to be sticking with just Herceptin. Still looking for a good vaccine program to enroll in.

Debbie K
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