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Old 08-22-2008, 10:45 AM   #7
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Marie,
I usually don't dare look at the Caregiver's corner because it is too hard for me and makes me cry. You are all such heroes to me.

What you are describing sounds to me like maybe a bit of post traumatic stress. Not that the issues you face are not real, but on top of that, add the accumulated stress of all the emotions you have put on the back burner the past 2 years while you focused all your energy on helping Ed get to remission. As Bill said, you have fought that battle and won!

This is not the same, but after my initial diagnosis and treatment (the one where they told me I was cured) I found myself bursting into tears for no reason. Just when I should have felt on top of the world. For me, it was the post traumatic stress.

Give yourself permission to put yourself first and give yourself some TLC. If you can't give yourself that permission, I grant it to you. As would Ed.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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