[michka]

My dosage is now 2.4. I am in the Theresa trial. TDM1 is not announced yet in France. I first was on 3.6 for 10 rounds then on 3.0 for 8 rounds and since April I am on 2.4 It is the minimal dosage allowed for this trial.
I already wrote about my SEs. The doctors decided to lower the dosage because of the breathing problems but also the fatigue.
The 10 first rounds were really tough for me. The first dosage reduction made me feel better. I could get up but I was still very tired and handicapped by my breathing. The second dosage reduction made a big difference. I still feel TDM1 is very toxic for me since I have pain fatigue neuropathy nausea and dryness. (and other minor problems) but I can live much better.
I do not know how much time the doctors will recommend us to take TDM1 and I figure they do not even now. I do not want to stay on Herceptin alone since I know it doesn't work for me and I am afraid to stop TDM1.
I however understand your question so well. I dream I could stop but I know I cannot. I also know how lucky I am TDM1 is working for me.
Fern you can ask for a dosage reduction first before stopping and see if you feel better. The last dosage reduction improved my dryness problems for example. Before it was horrible for my eyes,nose, mouth. Now I can manage.
Kathy you give me hope with your 4 years on TDM1. What does stable mean in your case?
Phil, do you have an opinion? You are our TDM1 "specialist".
Love to all. Michka