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Karen Wheel · 01-23-2012, 05:41 PM

PS Indeed.... I had issues the entire year with urinary tract pain and I felt like I had a bladder infection starting ... well almost constantly --- after I finished the Herceptin it did get better but I still battle the same feeling and I use D-mannose (a natural sugar that is completely safe and not a drug) whenever I feel a bit "iffy" I even keep a tiny "snack" sized ziplock of the powder in my purse incase I feel my bladder starting to hurt and I can nip it in the bud before it gets really uncomfortable. I would suggest that you try it as it might help you out. You can get it at most healthfood stores (in the US at least) I buy it when I am in the US and bring it back here to Italy as I really can't live without it! I read after I finished my year of Herceptin that there was some information out there that said that it could damage the bladder and well, I was one that got that lousy side effect --- although none of my doctors here in Italy thought I was anything but a worry-wart as they kept thinking I was crazy when I was always asking about why my bladder was so messed up. I still try not to go too far from a bathroom as it still is hard to hold it more that a few hours .... so I just plan accordingly and try to keep plenty of water in to help dilute any issues. Maybe you need to drink more water??? How much do you drink daily???

Karen

01-23-2012, 05:41 PM	#21
Karen Wheel Senior Member Join Date: Jul 2009 Location: Sardegna, Italy Posts: 362	Re: Cough from Tykerb...ANYONE??? PS Indeed.... I had issues the entire year with urinary tract pain and I felt like I had a bladder infection starting ... well almost constantly --- after I finished the Herceptin it did get better but I still battle the same feeling and I use D-mannose (a natural sugar that is completely safe and not a drug) whenever I feel a bit "iffy" I even keep a tiny "snack" sized ziplock of the powder in my purse incase I feel my bladder starting to hurt and I can nip it in the bud before it gets really uncomfortable. I would suggest that you try it as it might help you out. You can get it at most healthfood stores (in the US at least) I buy it when I am in the US and bring it back here to Italy as I really can't live without it! I read after I finished my year of Herceptin that there was some information out there that said that it could damage the bladder and well, I was one that got that lousy side effect --- although none of my doctors here in Italy thought I was anything but a worry-wart as they kept thinking I was crazy when I was always asking about why my bladder was so messed up. I still try not to go too far from a bathroom as it still is hard to hold it more that a few hours .... so I just plan accordingly and try to keep plenty of water in to help dilute any issues. Maybe you need to drink more water??? How much do you drink daily??? Karen __________________ Karen Wheelhouse Age: 46 Facebook id: Karen Wheel 2-09 – Age 44 -Biopsy-Cancer 3-09 – Right Quadrantectomy. Clear margins. 3 lymph nodes taken - all clear Tumor results: Stage 1, 1.5 cm, Her2 +++ Est positive 80% - Prog 10% - Ki67 postive 30% 4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH! 4-09 Started Herceptin & Chemo (9 weeks of Navelbine ) FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer! 8-09 - 30 RADS 9-09 - Said NO to hormone therapy 4-10 Finished Herceptin!!!! 7-10 PET Scan & other exams .... All clear! YIPPEE!!!! 11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED! 2-25-2011 --- 2 years from surgery and NED!!!!!! 7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]