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suzan w · 01-23-2014, 09:19 PM

I was scheduled for 6 chemo treatments. Adriamyacin/cytoxin. 2 week intervals. After the first 2 treatments I was in bad shape. Every side effect and then some. High fever, low white blood cell count...my onc held off on treatment #3 til I «recovered» . Treatment #3 and #4 were just as bad...my onc said, "that's it...no more"' I went on to complete my year of Herceptin. So, I only got 4 of my 6 treatments. At the time, I had to have the chemo before I could get herceptin. Early stage...I actually got herceptin off label as the FDA had not yet approved it for early stage. Now researchers are saying perhaps chemo is not advised in early stage, just herceptin.
That's my story!!

01-23-2014, 09:19 PM	#6
suzan w Senior Member Join Date: Sep 2005 Location: Naples FL Posts: 1,744	Re: Wisdom and experience needed! I was scheduled for 6 chemo treatments. Adriamyacin/cytoxin. 2 week intervals. After the first 2 treatments I was in bad shape. Every side effect and then some. High fever, low white blood cell count...my onc held off on treatment #3 til I «recovered» . Treatment #3 and #4 were just as bad...my onc said, "that's it...no more"' I went on to complete my year of Herceptin. So, I only got 4 of my 6 treatments. At the time, I had to have the chemo before I could get herceptin. Early stage...I actually got herceptin off label as the FDA had not yet approved it for early stage. Now researchers are saying perhaps chemo is not advised in early stage, just herceptin. That's my story!! __________________ Suzan W. age 54 at diagnosis 5/05 suspicious mammogram-left breast 5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++ 6/14/05 bilateral mastectomy, node neg. all scans neg. Oncotype DX-high risk 8/05-10/05 4 rounds A/C 10/05 -10/06 1 yr. herceptin arimidex-5 years 2/14/08 started daily self administered injections..FORTEO for severe osteoporosis 7/28/09 BRCA 1 negative BRCA2 POSITIVE 8/17/09 prophylactic salpingo-oophorectomy 10/15/10 last FORTEOinjection RECLAST infusion(ostoeporosis) 6/14/10 5 year cancerversary! 8/2010-18%increase in bone density! no further treatments Oncologist says, "Go do the Happy Dance" I say,"What a long strange trip its been" 'One day at a time' 6-14-2015. 10 YEAR CANCERVERSARY! 7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use 6-14-16. 11 YEAR CANCERVERSARY!! 7-20-16 Prolia injection for severe osteoporosis 2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL. 6-14-17 12 YEAR CANCERVERSARY!! still suffering from CIU. 4 hospitilizations in the past year as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!! 6-14-18 13 YEAR CANCERVERSARY!! NED!!