Re: 9 years this week
Bravo, Pam!
9 years of enduring this disease with grace, courage & focus, all while still providing encouragement & compassion to those of us that are on this journey with you. Your support & friendship has meant the world to me.
So glad you're tolerating the meds well, hoping the HFS continue to be manageable, and most importantly, hoping those drugs are doing their job!
I did have the Novalis & chemo-embo to my liver w/adria last week - just 5 days apart. It was pretty intense and I was wiped out for a few days, but now
the pin holes in my head from the head frame are healing nicely, though my scalps is still a bit numb.
2 days after the embo I was having some discomfort from the treatment, but that's subsided now too. I think I can even feel a difference in my liver...
No scans for 4 weeks though. In the meantime, continue with Ixempra.
May TDM1 become a reality for us all very very soon.
Hugs~
Jessica
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