HER2 Support Group Forums - View Single Post - ER+, HER2+

caya · 10-14-2008, 08:55 PM

I don't know if this will help at all Debbie, but I am also triple positive - ER+90%, PR+50% - I was node negative. I am approaching my 2 year date of diagnosis, my 2 year cancerversary will be Dec. 18th.
Very interesting discussion. My onc.sent my tumour out for testing 3 times as the first one was inconclusive, the FISH ones were highly Her2+. He still shakes his head when he sees me, because of this very small percentage of the Her2+ population that is triple+, never mind our very small subset group in the general BC population. On top of that, my tumour was also mucinous - another very small subset (like 2%) characteristic (a favourable one, more slow growing). This mucinous aspect probably had a great deal with my tumour being a grade 2.

I am hoping that being triple+ will bode well for very, very low recurrence rates - I guess only time will tell, as we get further "out".

all the best
caya

10-14-2008, 08:55 PM	#10
caya Senior Member Join Date: Jan 2007 Location: Thornhill, Ontario Canada Posts: 2,320	I don't know if this will help at all Debbie, but I am also triple positive - ER+90%, PR+50% - I was node negative. I am approaching my 2 year date of diagnosis, my 2 year cancerversary will be Dec. 18th. Very interesting discussion. My onc.sent my tumour out for testing 3 times as the first one was inconclusive, the FISH ones were highly Her2+. He still shakes his head when he sees me, because of this very small percentage of the Her2+ population that is triple+, never mind our very small subset group in the general BC population. On top of that, my tumour was also mucinous - another very small subset (like 2%) characteristic (a favourable one, more slow growing). This mucinous aspect probably had a great deal with my tumour being a grade 2. I am hoping that being triple+ will bode well for very, very low recurrence rates - I guess only time will tell, as we get further "out". all the best caya __________________ ER90%+/PR 50%+/HER 2+ 1.7 cm and 1.0 cm. Stage 1, grade 2, Node Negative (16 nodes tested) MRM Dec.18/06 3 x FEC, 3 x Taxotere Herceptin - every 3 weeks for a year, finished May 8/08 Tamoxifen - 2 1/2 years Femara - Jan. 1, 2010 - July 18, 2012 BRCA1/BRCA2 Negative Dignosed 10/16/06, age 48 , premenopausal Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so. Reclast infusion January 2012 Oopherectomy October 2013 15 Years NED!!