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Old 02-05-2014, 12:37 PM   #1
linn65
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Join Date: Dec 2012
Location: Attica, IN
Posts: 371
Pain is exhausting and a crying again. Help...

Today we had more snow and my boss said don't come to work the roads are shut down.

My onc did the hormone test and it says I am post menopausal and retest in two months. He switched me to arimidex.

I am past the point of thinking of a reoccurance it's this pain. I feel like I am trying everything; tens machine, alpha lipoic acid vitamin, pain meds, and now they added neurotoin which I did that faithful for a week (maybe not long enough).

I scheduled a 2nd appt for a second opinion with Dr. Kathy Miller for today but can't go because of snow. Rescheduled for feb 20th.

I think is this neuropathy? Sometimes I think yes maybe so and then I think maybe it's not. The top of my ankle bone where it meets your foot hurts really bad and when I flex it back and forth it pops. My hands hurt on the palm below my thumb. I go and do to try and take my mind off of it but it wakes me up at night too, so I don't ever sleep all night despite taking an ambien. I just feel like I want to cut my hands and feet off for relief. Like pulling a tooth out...oh and my toes are always ice cold ( but they don't hurt) it's the ankle bone.

I read about neuropathy and it doesn't feel like bees stinging me. Tingly and numb.....it hurts and it's driving me crazy. I don't know how people do continuous treatment because if I did reoccur I just think this isn't the life I want. And I know every ones different, and I admire everyone that's tough and can keep doing it, and I don't know how you do.

Today, I am just tired in every way. And I think has anyone had this pain like this ?

As usual thanks for letting me vent.....
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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