oh Heather, I wrote a long post to you and now its gone.
I agree with those who replied to you! Go get new onc and those opinions!!!!
Except for the urgent need for a breast cancer 'specilist'. My own onc is a generalist and my very own whom I totally trust and respect. He LISTENS to me. I have had brain mets totalling 22 in number over the past 7 yrs. It is he who has WORKED with me.
Cancer is now in spinal fluid. "LEPTO" is about as 'end stage' as you can get...
I'm giving you a small 'gift' of sorts. A web page that was not available to us who needed it until just a few yrs. ago:
BrainMetsBC.org
I truly hope it will comfort and inform you as it now has for so many like us in need.
big hugs with much hope,
XOXOXOXOXpattyz