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Old 03-01-2008, 05:03 PM   #5
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Not at all

I'm...lets see...3+ years out from stage IV diagnosis. Lori, I too had/have liver mets.

I'll share my experience. I had 6 months of chemo (TCH), and I "worked" throughout most of that time. My employer has been unbelievably supportive. In fact the first day I was off, my boss called in my entire staff and told them "this meeting is not about getting the work getting done, you are a great team and I know that will happen. This meeting is about how can we show Chris how much we love her."

My doctor ordered me to take a month off but I was going totally crazy so ended up going back to work after about 3 weeks. The owner of the company told me I could come back to work, even if all I did was filing or sit in my office. I did go back to work pretty much full time (partly from home especially during flu petri-dish season) and gave it my best shot. Although I admit to sitting in some meetings zoning out like a head on a post! (At least I had an excuse!).

I've been working full time (40+ hours/week) ever since then and have been treated very fairly in terms of my salary - and have been allowed much flexibility in my schedule to accomodate my various treatment adventures.

I, too, feel the "pressure" of expectations to continue to contribute at work, but it sort of takes the form of they want and expect me to be there for a long time doing what I'm good at - and I'm determined to go along with that!

I know I'm very blessed, and that not everyone has the good fortune to not only be treated fairly, but to find true love in the workplace.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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