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Old 04-25-2014, 07:35 AM   #8
linn65
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Join Date: Dec 2012
Location: Attica, IN
Posts: 371
Re: Shortness of Breath and so very scared

Hi there,

My feet and Hands hurt all thru treatment and after which they felt it was neuropathy, and I just didn't think it was. Finally stopped after having my Vitamin D checked and was put on a mega dose 50,000 units for 12 weeks of it and Glusocimine recommended by my ONC, so I HIGHLY SUGGEST CHECKING OUT VIT D, B6, AND B12 LEVELS AND TAKING THE GLUSCOMINE. The ONC said it helped a lot of her patients with pain in hands/feet and if no difference in 30 days simply stop taking it. Also, a multi-vitamen with Iron the brand I am using is Advocare for that....

You are so young to be going thru such a tough thing.....As Becky said it is a Cluster F*** or another one you could call it is a major freaking goat roping!!!

I am still tired and my emotions are up and down.....But I have read it takes about 2 years to get through all of the treatment and it takes 2 years to get over it too. The cure and the collateral damage is something!!

I feel your pain, and I am sorry.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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