Thread: Lost
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Old 06-04-2011, 06:39 AM   #5
Lori R
Senior Member
 
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
Re: Lost

Dear Michka,
You are such a determined fighter, you are certainly in the warrior hall of fame.

I don't have many answers but it appears that you are in the "waiting for answers" zone which is a very uncertain, anxiety filled place to be.

Was the slide with the liver met a recent one? If it is, the only thing that I can think of is that the met was in a location where RFA could not be performed. But....cryosurgery can often be used if that is the case.

Status of Navelbine....please be patient with the chemo to confirm whether it is or isn't working.

You will be OK as you are a fighter and you are on the right track about demanding support of ANY option from your Onc. You have been through so much and you deserve a treatment that will knock back the beast once and for all.

So smart of you to come to the site...Keep on demanding the best for yourself!!!!

XXOO Lori
__________________
2007
Oct - Diagnosed - Stage IV
5 c.m. IDC - Left Side er/pr- Her2+++
Node + 2/14 - Single Liver Met
Double Mastectomy
Nov - Begin T+H
2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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