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Lost
Hi,
After getting mad I obtained my pathology result for the last liver resection. It is HER3+ ER+ 70% and PR 0. In december after a celio it was 20% ER+ and 0% PR.
4,5 years ago it was 90% ER+ and 20% PR+. What does this mean? Why does it keep changing? I stopped taking anti estrogens after the 20% result.
I did not see my onc yet. I will have a Pet/scan within 10 days.
The MRI report says there is a tumor in a place that was there before and I don't know why they didn't take it out. It is the same one. All the other ones are gone.
There is also a small pouch of liquid about 3cm. That really frightens me.
I figure the first thing I have to do is get back on Faslodex. I have only had 1,5 round of Navelbine but it does not seem to be working. I remember that chemo does not work to good for ER+. Am I right or am I getting everything mixed up?
First I want this met zapped with RFA. Herceptin, chemo or whatever never worked for me.
Than I have to fight to get in a TDM1 trial. There are some in France but my onc has to fight for me. I hope he will.
I am so down after suffering so much. At least I was hoping I was not doing it for nothing. I need your fighting spirit. Love to all. Michka
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