HER2 Support Group Forums - View Single Post - Please post your two cents on Herceptin "side effects" real or perceived!

Andrea Barnett Budin · 04-22-2007, 09:30 AM

I'm thinking maybe I'm a rare bird. I've been on Herceptin since Nov '98! (With Taxotere (Sept '98 thru May '99). Every 3 wks till Jan '02. Now triple dosage every 3 wks. IS ANY ONE IS THIS BOAT WITH ME????!!!

I feel very fatigued. My red blood cell count keeps dipping below 12 into the low 11s. They give me Procrit (now Aransesp) and I feel perky. Slowly, I go down hill and find myself in need of Aranesp. DOES ANY ONE OUT THERE HAVE DIPPING HEMOGLOBIN #s????????? My doc has tried to find the cause and now calls it CHEMO-INDUCED ANEMIA. And I haven't had "chemo" since '99. It's 2007!

And now there's a whole controversary w/Medicare and most insurance cos denying NON CHEMO PATIENTS Procrit or Aranesp!

DOES ANY ONE KNOW ANY THING RE THIS ISSUE? I'm feeling awfully lonely and afraid, desperate and down. That's totally NOT who I am. I'm fighting for my life here. HEEELLLLLPPPPP!

ANDREA

04-22-2007, 09:30 AM	#179
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Longterm Herceptin Side Effects I'm thinking maybe I'm a rare bird. I've been on Herceptin since Nov '98! (With Taxotere (Sept '98 thru May '99). Every 3 wks till Jan '02. Now triple dosage every 3 wks. IS ANY ONE IS THIS BOAT WITH ME????!!! I feel very fatigued. My red blood cell count keeps dipping below 12 into the low 11s. They give me Procrit (now Aransesp) and I feel perky. Slowly, I go down hill and find myself in need of Aranesp. DOES ANY ONE OUT THERE HAVE DIPPING HEMOGLOBIN #s????????? My doc has tried to find the cause and now calls it CHEMO-INDUCED ANEMIA. And I haven't had "chemo" since '99. It's 2007! And now there's a whole controversary w/Medicare and most insurance cos denying NON CHEMO PATIENTS Procrit or Aranesp! DOES ANY ONE KNOW ANY THING RE THIS ISSUE? I'm feeling awfully lonely and afraid, desperate and down. That's totally NOT who I am. I'm fighting for my life here. HEEELLLLLPPPPP! ANDREA