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Old 11-15-2010, 08:12 AM   #528
Mary L
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Join Date: Nov 2010
Location: PA
Posts: 297
Re: Please post your two cents on Herceptin "side effects" real or perceived!

I forgot to mention that I had to receive herceptin over 2 hours as I had a bad reaction from it when they gave it over 30 minutes. I couldn't breath and I felt like I had an elephant sitting on my chest. I also didn't mention that I still have a red face which I can't stand. It comes and goes but it never fully goes away.
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Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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