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Old 03-29-2007, 06:04 PM   #32
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Boy am I torn on this thread!

First of all, I don't watch ANY daytime TV as I work (more than) full time. So I don't really know what I'm talking about on this thread, but the discussion has been great!

And EVERYONE who has commented on this thread is absolutely right. We're angry, sad, focused, positive, hopeful, all of it at different times.

I agree, you have to focus on the postive and as StephN said, be forward looking. And keep living your life.

The reality is, at this time metastatic disease is "not curable" but is treatable. This was Mrs. Edwards initial statement about her prognosis, and is exactly what I was told by my rockstar oncologist. At that point, hearing that they were beginning to look at Stage IV bc as a chronic condition that could be managed for a long time was the first HOPE we got. My other hope is that major breakthroughs are just around the corner.

On the other hand, although Rosie or whoever quoted stats was probably quoting accurate stats, they are historical and thus (hopefully!) improving every day. Furthermore, statistics are just that and not a specific prognosis for any individual. There are so many factors influencing this.

That said, I think that the media loves to use words like "terminal" because that makes it so much more dramatic. Like we NEED more drama in our lives! That does a disservice to those who are trying to maintain positive energy in the face of a difficult situation.

Anyway, I'm ramblin on aimlessly, you are all so awesome I thought maybe if I posted on this thread I could be awesome by association!

Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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