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Old 04-22-2008, 12:38 PM   #16
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Question Duh, what was I doing??

Good topic and I know it has been discussed earlier in these pages.

Have any of you tried any of the "memory enhancement" supplements?
My cancer is hormone neg and I was already post meno at dx, and seemed to be coping ok with memory till my diagnosis.

After having TWO long rounds of hard chemo in successive years, I really noticed my ability to carry on with things drop after the second go round. The "Zombie syndrome" was more apparent and a lot less got done.
I did get a short course of Ritalin from my med onc during my radiation as my ability to focus and finish a task was very scattered then.

After all the drugs for mets I began taking Lions Mane Mushroom capsules and did notice an improvement.
Then I found another one called "Neurozyme" by New Chapter. For "Supercritical Mental Clarity." It does have Ginko along with many other good things.
One thing I like about it is that it "reduces cortisol," a stress hormone that makes us hold the spare tire fat.

Last year I had to keep a lot of new and technical information on my Dad's medical condition in my head to explain to far off family members. Two years prior I could not have done that!

P.S. Since my Gamma knife and other work on my head for the brain mets, I also felt the need to somehow add something to the CoQ 10 for my brain health.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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