View Single Post
Old 04-22-2014, 02:38 PM   #6
AlaskaAngel
Senior Member
 
AlaskaAngel's Avatar
 
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
Question Re: e-string works great

At least one other potential solution for us remains in limbo.

I've been following the development and clinical trials for the use of ospemifene for many years now. I tried to get into a clinical trial for it, but could not because I'd had breast cancer. But it has been approved for general use for these problems. Interestingly, it, like tamoxifen, is a SERM.

I would think a SERM that could help with these issues logically could be a better choice than tamoxifen, but based on my attempt to participate in a clinical trial for ospemifene as a breast cancer patient, that doesn't seem to have been investigated thus far in our behalf, possibly on the usual basis that they don't want to put any of us at any additional risk simply to find better solutions for our care. I personally don't agree with that, although can understand if others prefer to minimize QOL to minimize risk. However, like the use of the E-string, it should still be available to those of us who are willing to try it.
__________________
Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
AlaskaAngel is offline   Reply With Quote