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Old 04-22-2014, 11:59 AM   #2
AlaskaAngel
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Join Date: Sep 2005
Location: Alaska
Posts: 2,018
Re: e-string works great

That's wonderful, Julie! I do think sharing that info is so helpful, especially for those who are not far out from diagnosis or treatment, so that they might benefit.

On the darker side, age matters, as well as often the amount of treatments and type of treatments. So many times people post their experience without giving their age. Posting your age was helpful, Julie.

Here's one more anecdote, just for another perspective:

Although I am strongly HR+, my onc prescribed the E-string for me as well, even when HR positivity was not thought to be an exception. I was 51 at time of diagnosis about 12 years ago. I used it for a while and got by in that it reduced the painful dryness (and I think it probably helped me to avoid dry skin and thinning hair, as well as preserving more of my vision for a longer time). So maybe it had some systemic effect, but still... I've had no recurrence, and it DID help some for a couple of years. It didn't increase libido for me, which has been pretty much zero since treatments in 2002.

A.A.
__________________
Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
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