HER2 Support Group Forums - View Single Post - Half of breast cancer patients treated with antihormonals are noncompliant ie, do not

caya · 06-29-2010, 08:11 AM

Count me in gals... I think the s/es are def. worse for us younger gals (under 50 or so at diagnosis) because we have not yet gone through menopause, and then we are slammed into it.
I think many oncs. have the attitude of "suck it up" in regards to our joint pain, vaginal atrophy, etc. Lose weight, the excess pounds are not good for you... Uh, yeah I know that, but since I have been eating zero carbs, almost no dairy, very little fruit, and existing on probably 1200-1400 calories/day... please explain to me why I have gained about 25 lbs. since I've been on the anti-hormonals - Tamoxifen and now Femara.
Constant UTIs, no energy, etc. etc.
Of course we are grateful we are alive, and have these meds to help prevent recurrence, but QOL is important too.

all the best
caya

06-29-2010, 08:11 AM	#4
caya Senior Member Join Date: Jan 2007 Location: Thornhill, Ontario Canada Posts: 2,320	Re: Half of breast cancer patients treated with antihormonals are noncompliant ie, do Count me in gals... I think the s/es are def. worse for us younger gals (under 50 or so at diagnosis) because we have not yet gone through menopause, and then we are slammed into it. I think many oncs. have the attitude of "suck it up" in regards to our joint pain, vaginal atrophy, etc. Lose weight, the excess pounds are not good for you... Uh, yeah I know that, but since I have been eating zero carbs, almost no dairy, very little fruit, and existing on probably 1200-1400 calories/day... please explain to me why I have gained about 25 lbs. since I've been on the anti-hormonals - Tamoxifen and now Femara. Constant UTIs, no energy, etc. etc. Of course we are grateful we are alive, and have these meds to help prevent recurrence, but QOL is important too. all the best caya __________________ ER90%+/PR 50%+/HER 2+ 1.7 cm and 1.0 cm. Stage 1, grade 2, Node Negative (16 nodes tested) MRM Dec.18/06 3 x FEC, 3 x Taxotere Herceptin - every 3 weeks for a year, finished May 8/08 Tamoxifen - 2 1/2 years Femara - Jan. 1, 2010 - July 18, 2012 BRCA1/BRCA2 Negative Dignosed 10/16/06, age 48 , premenopausal Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so. Reclast infusion January 2012 Oopherectomy October 2013 15 Years NED!!