HER2 Support Group Forums - View Single Post - ~Pain Well Controlled And Then Bammmmm!!~

Believe51 · 05-19-2009, 10:01 PM

Bone mets have always plagued Mighty Oak since day one, both lytic and blastic lesions. Recently some may remember that we had the pain overcome Ed and get ahead of him. Thanks to you Angels we were set on the right path after a long struggle. Pain management was well controlled for some time and Ed would have sudden 'attacks' that lasted days but were still controlled. No matter how well controlled though, there is always pain.

He started out with more than usual pain 2 days after treatment and this time it blew him out of the water. At first we thought it was the side effects of the Ixempra treatment, but quickly realized that it was not. This time it was the most pain he has ever had in this journey. He could not manage with the medication he had and he has some heavy duty drugs. The way he was falling asleep was 'passing out' and for no more than 15 minutes because the pain would wake him up again.

I cried this morning as I called the doctor and begged for something stronger. I miss my husband! They sent in an emergency 3-day supply for him and I picked that up and administered a magic pill all in record time of 30 minutes (Oh yeah, who's the girl?? hehehe). I will travel early tomorrow to get the prescription and get that filled. He is my good 'ole boy again acting real crazy once more....whew.

Please if anyone has had any kind of pain issues like this make sure that you have something that will kick butt for that breakthrough pain in a pinch. If we were allergic to bees we would have a kit in the car right?....and maybe we would never need it. Not all of us will have the kind of pain that he has but there are cases. Please be ready, especially because we were ready and used up our backup drugs but still needed more. The amount of drugs he needs to control this pain is ridiculous. I feel sometimes like I am so selfish to encourage him on. We once again talked about stopping treatment possibilities....but not now.....

Right now we plan on beating the living DNA right out of those repulsive cells. We are here to make history and it starts now!! First Ixempra went as well as any other chemo but not a complaint...so like Mighty Oak. The only complaints were pain. We have it controlled and we are focusing on the plan.>>Believe51

05-19-2009, 10:01 PM	#1
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	~Pain Well Controlled And Then Bammmmm!!~ Bone mets have always plagued Mighty Oak since day one, both lytic and blastic lesions. Recently some may remember that we had the pain overcome Ed and get ahead of him. Thanks to you Angels we were set on the right path after a long struggle. Pain management was well controlled for some time and Ed would have sudden 'attacks' that lasted days but were still controlled. No matter how well controlled though, there is always pain. He started out with more than usual pain 2 days after treatment and this time it blew him out of the water. At first we thought it was the side effects of the Ixempra treatment, but quickly realized that it was not. This time it was the most pain he has ever had in this journey. He could not manage with the medication he had and he has some heavy duty drugs. The way he was falling asleep was 'passing out' and for no more than 15 minutes because the pain would wake him up again. I cried this morning as I called the doctor and begged for something stronger. I miss my husband! They sent in an emergency 3-day supply for him and I picked that up and administered a magic pill all in record time of 30 minutes (Oh yeah, who's the girl?? hehehe). I will travel early tomorrow to get the prescription and get that filled. He is my good 'ole boy again acting real crazy once more....whew. Please if anyone has had any kind of pain issues like this make sure that you have something that will kick butt for that breakthrough pain in a pinch. If we were allergic to bees we would have a kit in the car right?....and maybe we would never need it. Not all of us will have the kind of pain that he has but there are cases. Please be ready, especially because we were ready and used up our backup drugs but still needed more. The amount of drugs he needs to control this pain is ridiculous. I feel sometimes like I am so selfish to encourage him on. We once again talked about stopping treatment possibilities....but not now..... Right now we plan on beating the living DNA right out of those repulsive cells. We are here to make history and it starts now!! First Ixempra went as well as any other chemo but not a complaint...so like Mighty Oak. The only complaints were pain. We have it controlled and we are focusing on the plan.>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!