Crap, crap & more crap.
Just wanted to keep you lovely ladies updated on what going on.
I have had 2 more mugga scans
August 30th score- 50% (again!)
Sept 18th score- 52% (only up 2%)
I have also developed a cough since August 30th. It feels like the same cough when the lymph nodes in the chest were swelling with "C" (I hate that word). I see my new doc for the first time on the 25th. Thank you all for all the suggestions. It gives me ideas to suggest for the doc. I & my husband wonder what is the magic number is for when I can go back on Tykerb.
I have been stationary bike riding which I find very boring. I have also started walking which my two little ones love to do with their mom. It is becoming quite the juggling act to keep the Hand & Foot Syndrome also under control but also getting exercises done. I don't want them to stop my Xeloda as well! I find exercising hard to do cause I am sooooooooo tired most of the time. But I know (especially when I look into the big brown eyes of my two precious kids) that I must fight & fight harder.... damn it... and I will!
Thank you all for responding to my post and for all the suggestions. I love you all my warriors!
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Sept. 2003- 5cm tumor in left breast Her2+ Er- Pr- grade 3,
Mastectomy & 11 nodes removed, all negative.
4 rounds A/C + 12 wky Taxol
25 rads
Dec 2006- recurrence Stage IV (diagnosed 3 days before Christmas!) Lymph nodes in chest, liver, 3 ribs
January 2007- 3 tri wkly rounds of Taxol/Herceptin
Response to lymph nodes in chest, but several more bone mets (skull, shoulders, more ribs, femur, several on spine), liver tumors still growing.
March 2007- 8 wkly rounds of Navelbine/Herceptin/ every 4th wk Zometa
Lymph nodes in chest look great, but more bone mets (of course!), Clavicles, hips, and sacrum (above tail bone) to add to the list. Liver mets still growing.
June 5- started Tykerb/Xeloda
Aug 14- Scans are showing great progress! Tumor shrinkage and bones are healing!
Nov 21 CT scan shows tumor growth in liver & bones next Doc appt on 11-27
Dire need of a lot of prayers and a miracle.
Stay at home mom, 5 yr old girl & 8 yr old boy.
Wife of loving husband
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