My dear sisters,
Thank you all for your responses.
My doctor's office called today telling me to stop taking the Tykerb and that they have scheduled me for another Muga scan in two weeks.
I am currently taking 1000-2000 mg of fish oil and 300 mg of CoQ-10 daily. I have started walking the last couple of nights. Lack of exercise has been a big issue for me because I have found that these drugs have been making me very tired. But I will push myself to get the exercise because this treatment of Tykerb/Xeloda have been the only thing that has worked for me so far since being dx stage 4 in December.
I just want to keep all of you updated.
Thank you again for your responses and prayers.
Love & hugs,
Michelle
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Sept. 2003- 5cm tumor in left breast Her2+ Er- Pr- grade 3,
Mastectomy & 11 nodes removed, all negative.
4 rounds A/C + 12 wky Taxol
25 rads
Dec 2006- recurrence Stage IV (diagnosed 3 days before Christmas!) Lymph nodes in chest, liver, 3 ribs
January 2007- 3 tri wkly rounds of Taxol/Herceptin
Response to lymph nodes in chest, but several more bone mets (skull, shoulders, more ribs, femur, several on spine), liver tumors still growing.
March 2007- 8 wkly rounds of Navelbine/Herceptin/ every 4th wk Zometa
Lymph nodes in chest look great, but more bone mets (of course!), Clavicles, hips, and sacrum (above tail bone) to add to the list. Liver mets still growing.
June 5- started Tykerb/Xeloda
Aug 14- Scans are showing great progress! Tumor shrinkage and bones are healing!
Nov 21 CT scan shows tumor growth in liver & bones next Doc appt on 11-27
Dire need of a lot of prayers and a miracle.
Stay at home mom, 5 yr old girl & 8 yr old boy.
Wife of loving husband
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