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Old 08-24-2012, 11:59 AM   #17
rhondalea
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Join Date: Jun 2011
Location: Somerset, NJ
Posts: 487
Re: I couldn't make this up if I tried

I'm with you on the obnoxious onc, although at least I have the benefit of a good RO who is willing to compensate somewhat for his colleague's deficiencies.

I received my MRI results 15 minutes ago. Nothing growing, thankfully, but I'm not sure I trust the results--nowhere in the report does it say, "Brain is oatmeal," but there's absolutely no doubt that my brain is currently the consistency of porridge. You'd think they'd have picked that up.

To get the MRI, I didn't have to ask. I just had to mention the headache (which I really do have), the transient nausea and a general sense of not being entirely present in my body. I made it clear that a) I had talked to a doctor at Sloan-Kettering about the sorry state of my consciousness and comprehension, b) that I planned to get help for it, and c) that I wasn't asking for her input or assistance. She seemed to take that as a challenge, which is how I ended up lying in a tube listening to bad music (the purpose of which was apparently to mask the excessive noise that has undoutedly damaged my already fragile hearing).

So with these deity wannabes, the answer seems to be that they have to come up with the idea themselves. Don't ask for anything, just ramble on about a bunch of symptoms (and possibly what you plan to do about them on your own) and wait while the overweening ego rights itself and figures out how to be back in a place of control.
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2/6/09 Core needle biopsy: negative; Mammos through 2010: no change
3/30/11 Pea-sized lump in left breast at site of prior biopsy; mammo negative, sonogram not so much
4/14/11 Core needle biopsy: negative for cancer
5/18/11 Excisional biopsy 1.2 cm tumor, LVI, positive margin; ER+60%,PR+20%,HER2/CEP17 5
6/15/11 BMX: Left DCIS & LH; Right ADH; SNB: 2/3 nodes: 1.4 cm and 1 mm; ALND L1&2: 0/10; Stage IIa, Grade 3
7/14/11 CT/Bone scans NED; MUGA 66%
7/19/11 Biweekly dd AC w/Neulasta; done 8/30/11
9/13/11 Transfusion (Hemoglobin 8.6); MUGA 64%
9/20/11 Start Taxol + Herceptin; Taxol done 12/6/2011; continue Herceptin until 9/4/2012
12/27/11 Radiation - 6 weeks; 2/27/2012 - DONE! Yayyyy!
2/29/12 Start Tamoxifen 20 mg/day; continue until 2/28/17
5/16/12 Start five-years Metformin trial
6/19/12 MUGA 61%
8/21/12 Brain MRI NED (head still hurts, brain still fogged)
9/4/12 Herceptin done!
9/6/12 Port out!
7/11/13 Aricept 5mg for cognitive impairment; increased to 10mg as of 8/23/13; back to 5mg 12/2013
5/2014 Add Namenda 7mg
9/2014 Stop Aricept and Namenda; Neuropsychological evaluation
10/24/14 Start cognitive rehabilitation therapy
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