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Old 11-02-2009, 04:54 PM   #1
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Cool Nine years ago today - and counting ...

I was trying to come to after my lumpectomy. Was having a hard time getting my blood pressure up and feeling nauseous from the anesthesia. They had to get a shot (epi) ordered to try and bring me out of it. Had to spend the night in the hospital (was not a "drive-through" day for me!) as blood pressure would not come up over 100 by 9 pm!

As I lay there trying to recover from the surgery drugs I had no idea what was in store for me. I was taking things one day (or week) at a time, trying to comprehend what I had to do just get through the initial phases of dealing with this very unexpected disease.

My surgeon came in and said something about clean margins and cancerous sentinal nodes. I could not tell if that was good news or not. Was I in some kind of weird dream?

So, now it is 9 years later and I still live my life in fairly short increments. My calendar still has medical appointments every month, and the cancer ball and chain is still firmly fixed to my ankle. Some days it feels lighter and easier to drag around and other days the weight is almost stagnating.

Just want to share that the days will fade into weeks, the weeks into months, and the months melt into years while daily life continues as best we can make it.

I thank and send praises to whatever entities allowed me to have and keep the faith in myself.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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