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Old 04-18-2009, 08:13 AM   #11
Lori R
Senior Member
 
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
Thank you all soooo sooo much for the words of encouragement and advice. I am sure each of you knows the lonely feeling of fighting this disease while trying to keep a positive face for family and friends.

It is such a relief to have a place to come and "let it all hang out".

I am excited by all of the advice and I will spend the next few hours following up to continue to challenge (er....drive my onc crazy) my Dr. in her thinking and game plan.

Rich...I used to be blonde so maybe I can act like I am Swedish. I'll have to try to develop a Swedish accent for when I contact them!!!

Chrisy....We are absolutely on the same page in regards to going back on Chemo that would destroy my immune system. The first round of Taxotere really did a number and I had to take the neulasta shots to keep afloat. Maybe my body is sensing that something is in the works as after being incredibly healthy, I just came down with a whopper head cold. Hmmmmm.

I don't know what I would do without this site...WOS and KK1, thank you for letting me know that I am not alone in trying to support a teenage daughter. It sounds as if your daughters are as generous and loving as mine. Aren't we lucky.

I love you all and feel much more at peace knowing that I have such a fantastic support team. HUGS!!!! Lori
__________________
2007
Oct - Diagnosed - Stage IV
5 c.m. IDC - Left Side er/pr- Her2+++
Node + 2/14 - Single Liver Met
Double Mastectomy
Nov - Begin T+H
2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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