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Needing positive support
I have not posted for a while. I have been reading postings here off and on when I've had time.
I've been quite busy seeing various doctors, contacting offices etc. I don't even know where to begin.
The happy part of the story - I had a great last pet scan about 5 weeks ago, for the first time it seems the chemo is working good. However, when they did the scan of the met in my brain it was not good. It did not stop growing. However, the doctors believe there is a chance I am still treatable.
Monday morning I will be having brain surgery to have as much of the tumor removed as they can and will have gliadel wafers implanted by it to hopefully kill the rest. It is in the brain near the language center. I am scared.
If there is anyone out there who knows anything positive about this, I sure could use hearing about it.
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Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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