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Old 08-26-2009, 09:12 AM   #20
vickie h
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Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
Re: Update: Spinal Fluid me

Hi Paty,
It is so good to hear from you. I had been wondering where you were. You have been an inspiration to me from the beginning. And your post was so brutally honest it made me cry. I have just started a trial with Pazopanib, as I, too, am considered "at the end of the line" as far as treatments go and I am actually okay with that these days. If this doesn't work, there is very little left to do. I haven't posted this because I feel it just isn't time yet.
Can you try this trial drug? I am praying for you ands your comfort and healing. Let's hang in there together.
Much love,
Vickie
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Love and Hugs, Vickie

Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.


Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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