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Old 07-09-2009, 11:39 AM   #40
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Eric,
I'm not even going to read anyone's response here, I expect I will say much the same thing.

I am so saddened by this news, and wrap you and your family in loving prayers.

I think Caryn was always an angel, she has just moved on - whole and complete in God's embrace.

You are also an angel. I've learned and gained so much strength from you and Caryn's example. Caryn fought so hard, with you beside her. I can't imagine what you are going through - although I do imagine it all the time just with different faces (my family's faces).

What I would hope for myself and my family (aside from, as you called, radical changes in the fight) is that they would stand with me, fight for me and love me with even half the grace and passion that you have held in your fight.

I would hope to be as courageous and determined as Caryn was. I would hope that my husband, sister and niece would never feel they failed, would never let themselves be without love, and would find sunshine and joy again soon. And that they would know I would never leave them, I would always be as close as a memory and if they ever needed my advice, they could just ask "what would aunt chris say?" then listen to their hearts.

With much sorrow and love,
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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