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IRENE FROM TAMPA · 06-27-2008, 03:17 PM

Hi everyone -

I have not been posting much lately but all of you are always on my mind and prayers.

I just wanted to give update on my first cycle of the Herceptin/DM1.

I took my first treatment on 6/11th (the day we were leaving for the beach) I immediately developed a fever which lasted for 7 days. My Nurse Practioner said there is something called tumor fevers which could be what I had. I have terrible pains in my back but I was already having those before I began the treatment. Do not know if all attributed to the spine mets or my muscles have become very weak. Other then that my blood counts (CBC) have been great so far and I just had a Echo cardio which I will review with my onc.onTuesday. My liver enyzmes are very high but since I have around 6 tumors there and I am sure my liver is working extra hard, this is surely expected.
I have my 2nd treatment on Wed.

He will be starting me on Zometa but does not like to introduce it until he sees how I react to the new drugs.

I am tired but all and all not bad. 'After 12 1/2 years of constant chemo I think my body has been pretty good to me.

My company has set me up to work from home which I was hoping to do since this year has been really tough on me and did not think I could continue the driving back and forth to the office plus the added stress.

Hope everyone is doing good and I will be checking in to see how everyone is.

Love you guys

06-27-2008, 03:17 PM	#1
IRENE FROM TAMPA Senior Member Join Date: Oct 2005 Location: TAMPA, FL Posts: 568	Update After First Cycle Of Her/cm1 Hi everyone - I have not been posting much lately but all of you are always on my mind and prayers. I just wanted to give update on my first cycle of the Herceptin/DM1. I took my first treatment on 6/11th (the day we were leaving for the beach) I immediately developed a fever which lasted for 7 days. My Nurse Practioner said there is something called tumor fevers which could be what I had. I have terrible pains in my back but I was already having those before I began the treatment. Do not know if all attributed to the spine mets or my muscles have become very weak. Other then that my blood counts (CBC) have been great so far and I just had a Echo cardio which I will review with my onc.onTuesday. My liver enyzmes are very high but since I have around 6 tumors there and I am sure my liver is working extra hard, this is surely expected. I have my 2nd treatment on Wed. He will be starting me on Zometa but does not like to introduce it until he sees how I react to the new drugs. I am tired but all and all not bad. 'After 12 1/2 years of constant chemo I think my body has been pretty good to me. My company has set me up to work from home which I was hoping to do since this year has been really tough on me and did not think I could continue the driving back and forth to the office plus the added stress. Hope everyone is doing good and I will be checking in to see how everyone is. Love you guys __________________ Irene from Tampa 1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU 1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER TREAT: STEM CELL REPLACEMENT/HERCEPTIN. 2002 - RECUR TO LIVER TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA. 2004 - TUMORS STILL IN LIVER TREAT: RFA TO LIVER STABLE UNTIL 2004 - TUMOR PROGRESSION IN LIVER. TREAT: RESECT HALF OF LIVER. 2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER. TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON THIS TRIO. STARTED ON ABRAXANE. 2006 - PROGRESS WITH 2ND TUMOR GROWTH. TREAT: AUG. BEGAN ON TYKERB/XELODA TRIAL. CONSIDERED STABLE TO DATE. 2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO PROGRESS STARTING TYKERB/AVASTIN. NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH IN ABDOM. AND TWO NEW TUMORS IN NECK AREA. BEGAN HERCEPTIN/AVASTIN/TAXOTERE Feb 08 - Ixempra/Xeloda June 08 - Her/DM1 trial *"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO* *NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."* Last edited by IRENE FROM TAMPA; 06-27-2008 at 03:19 PM..