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Old 09-28-2013, 03:13 PM   #8
dawny
Senior Member
 
Join Date: Oct 2011
Location: Geelong, Australia
Posts: 250
Re: Fri the 13th Scans... Any News?

I have some bad scan results NEDenise
I have been on TDM -1 trial for a few months, and my scans last week showed my two lymph nodes in the chest wall are still stable, but I have a new lump in the breast, and some axilary lymph nodes. So, progression whilst on Godzilla. I never had a mastectomy as I was diagnosed at stage four, and went straight to chemo.
The trial onc wants to treat aggressively and do a mastectomy and radiation to the chest wall. I will be going back to my old onc though, who is closer to home, and in a much nicer, quieter hospital. I have an upcoming appt with her, but I think i know what she will say - no mastectomy, no radiation, just change chemo. She is of the opinion that it is already stage 1V, why put yourself through the pain of surgery and radiation, when chemo hopefully can clear all the areas? I still consider myself very lucky to not have organ/bone/brain involvement. Although the trial nurse forgot to book a brain scan, so I am not sure if that is clear.
I have a holiday booked, I just knew something would come up! But I am going away for 9 nights, I am going to enjoy time with my family, maybe a few cocktails, and try not to worry what comes next!
Love to you
Dawn xx
__________________
Dx May 27 2011, age 43
Stage 1V 3.6cm breast lump, spot on lungs, nodes chest + neck
HER2+ ER/PR-
Abraxane weekly - 16 weeks
Herceptin every third week
September 26 2011 N.E.D!
Herceptin ongoing
8th Dec 2011 Brain MRI - clear
20th Dec 2011 bone/cat scan clear still NED
April 2012 scans show axillary node lump - ? what to do...
June 2012 Axillary node dissection 1/11 nodes affected, a wide local excision shows DCIS. Now what to do again? Watch and scan 3 monthly
April 2013, two spots in nodes to chest wall, start TDM1 (Kadcycla) as part of clinical trial
July 2013 stable
Oct 2013 progression off TDM-1 (Kadcycla)
Nov 2013 radiation to lymph nodes in sternum
Dec 2013. Mastectomy right side, pathology shows tumour was HER-2 negative, no wonder TDM-1 (Kadcycla) didn’t work!
April 2014 NED. On Herceptin only
August 2014 NED. On Herceptin only
March 2015. NED. On Herceptin only
September 2015 NED on Herceptin only
March 2016. Pulmonary embolism, Clexane injections daily forever. Still NED On Herceptin only
Nov 2016. Bone Mets in ribs - Radiation. Don’t know if bone Mets are er-/pr-/HER2+ or triple negative.
Can’t give self injections on to tablets (Xarelto) for blood clots.
2017 NED - On Herceptin only
2018 NED - On Herceptin only
2019 NED - On Herceptin only
2020 NED - On Herceptin only
2021 NED - On Herceptin only

Last edited by dawny; 09-28-2013 at 03:15 PM.. Reason: Typos
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