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Lee,
The hardest part for me is dealing with the thought that the odds are that I will lose my wife and my kids will lose their mother who they (and I) need and love so deeply. It is a thought that I am faced with almost every waking moment and one that definitely encroaches my sleeping hours as well. I always feel like like losing it, but I can't. It wouldn't do help my kids, my wife or myself. That doesn't mean that I can't go alone somewhere and cry to myself or yell at God but when I'm done, I need to pull myself together and be there for my family (and myself).
I think what helps me is realizing that I can only try my best to educate myself and the doctors (when necessary) and do the best I can to be there for the ones I love.
The positive is the confirmation for my wife that I do truly love her and will do what I can to take care of her the best I can.
Eric
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