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Old 06-10-2009, 07:53 PM   #1
micheleu
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Join Date: Sep 2006
Location: Nebraska
Posts: 154
Went with 20 year old to dr. today..advice

Ok, I'm still realing from this day. I went with family to visit the dr. today. Was shocked what was coming out of his mouth. Found out she is stage 4 hormone positive Her2 neg. BRCA not done yet. It is mostly in her bones. Sacrum and along the spine and ribs and possibly shoulder. Small spot in liver but they are not sure about that spot being cancer. I asked dr. about stopping her birth control, which she was still on and i told her to stop, and he said NO!!! That started it all....He then told her to start radiation and Tamoxifen and that's it!!! I understand where he was coming from with quality of life...but she is 20!!! The family is going for a second opinion friday with a breast cancer dr. I told them to not get the radiation tomorrow because that would kick her out of any clinical trials if they decide to do that. Opinions here. The scan also showed a 6cm tumor in breast and lymph node involvement. Does anyone know of any trials for her? thanks!!
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Michele Ulmer

Dx.2003 Stage 3b 35 pos nodes

Dx August 2003 Stage 3B with 35/35 nodes IDC age 39
Lumpectomy
A/C x4 Taxol x12
35 radiation tx
1Year Herceptin in trial
HER2 vaccine trial Seattle
3 months Tykerb off label
NED

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