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annettchen · 12-14-2015, 09:10 PM

Unfortunately no good news here. Brain mets confirmed. Two 5 mm ones in the cerebellum (still horseback riding, though, which I find kind of amazing), and apparently a scattering of "points that light up" "everywhere". Meeting with onc on Wednesday. From my perspective first choice is IT Herceptin - wondering whetehr that is sometimes combined with stereotactic radiosurgery (on the two bigger ones?).

Second choice T-DM1 + Perjeta. Or possibly try and get into the trial (or compassionate access?) for ONT-380.

CANCER SUCKS.

I need another 10 years with my daughter. I cannot go yet.

12-14-2015, 09:10 PM	#8
annettchen Senior Member Join Date: Mar 2014 Posts: 95	Re: Suspicion of many scattered brain mets Unfortunately no good news here. Brain mets confirmed. Two 5 mm ones in the cerebellum (still horseback riding, though, which I find kind of amazing), and apparently a scattering of "points that light up" "everywhere". Meeting with onc on Wednesday. From my perspective first choice is IT Herceptin - wondering whetehr that is sometimes combined with stereotactic radiosurgery (on the two bigger ones?). Second choice T-DM1 + Perjeta. Or possibly try and get into the trial (or compassionate access?) for ONT-380. CANCER SUCKS. I need another 10 years with my daughter. I cannot go yet. __________________ Annette ---------------------------------------- 03/2014: Diagnosed with ER/PR-, HER2+++ MBC (bone mets, oligometastatic) 04/2014: Started 6 cycles of "PHD" (Perjeta, Herceptin, Docetaxol) 07/2014: Finished 6 cycles of PHD; restaging; 2 bone mets are sclerotic - looks like Herceptin and Perjeta is working 10/2014: STABLE! 01/2015: STABLE! 04/2015: STABLE! 08/2015: STABLE! 12/2015: BRAIN METS. BODY STABLE.