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agness · 08-16-2017, 10:49 AM

Hi Tracy,

How insane is that? I'm so glad your recent scan show stability.

I'm still dealing with Regence (Blue Cross) wanting to deny payment on Avastin from October 2016-January 2017. I had three policies with Regence during that time and they are only applying the appeal to the most recent policy. I've got a medical attorney working on it for me as it is a lot of money they are tying to avoid paying. Same patient. Same doctor. Same drug. Shown to be effective and yet they are claiming that it was experimental -- while they are also accepting that it worked in my case. Ugh. Makes my head spin.

Still, yeah for clean scans.

Ann

08-16-2017, 10:49 AM	#9
agness Senior Member Join Date: Aug 2014 Location: Seattle, WA Posts: 285	Re: Update, good news, bad news Hi Tracy, How insane is that? I'm so glad your recent scan show stability. I'm still dealing with Regence (Blue Cross) wanting to deny payment on Avastin from October 2016-January 2017. I had three policies with Regence during that time and they are only applying the appeal to the most recent policy. I've got a medical attorney working on it for me as it is a lot of money they are tying to avoid paying. Same patient. Same doctor. Same drug. Shown to be effective and yet they are claiming that it was experimental -- while they are also accepting that it worked in my case. Ugh. Makes my head spin. Still, yeah for clean scans. Ann __________________ Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall. Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy. 7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED. 10/27/15 atypical uptake in right cerebellum - inflammation? 12/1/15 Leptomeningeal dx. Starting IT Herceptin. 1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly 3/2016 - stable scan 5/2016 stable scan 7/2016 pseudoprogression? 9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT 11/2016 Cyberknife to temporal lobe, HBOT just prior 12/2016 - lesions starting to show shrinkage 8/2017 - Stable since Dec 2016. Temporal lobe lesion gone. Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing. Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for.