HER2 Support Group Forums - View Single Post

Becky · 11-04-2010, 01:01 PM

First off, I want to say that you do NOT have mets all through your body. Taxanes can do quite a number on our nerves (Taxotere or Taxol). I have a friend who did develop FM from the Taxol treatments but she is doing very well now.

Herceptin also causes body pain and someone mentioned the lack of estrogen which affects all premenopausal women who get chemo. I have not yet met one woman (even those in their early 30's) who did not go through chemopause (although some women rebound 6+ months after the last chemo and get their period back). You have been smacked a triple whammy on top of known bone degeneration (you did mention prior existing neck and spine problems).

Pain is no fun at all and it needs to get addressed. If the thought of mets is also strong on your mind, get scans done to knock that out of the ballpark (sometimes no matter what any doctor, nurse or friend says - you still can't shake that nagging feeling). However, I don't think mets are your problem but you do have a problem that you have to solve so you can move on pain free.

11-04-2010, 01:01 PM	#8
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	Re: Constant all over body pain (m)... First off, I want to say that you do NOT have mets all through your body. Taxanes can do quite a number on our nerves (Taxotere or Taxol). I have a friend who did develop FM from the Taxol treatments but she is doing very well now. Herceptin also causes body pain and someone mentioned the lack of estrogen which affects all premenopausal women who get chemo. I have not yet met one woman (even those in their early 30's) who did not go through chemopause (although some women rebound 6+ months after the last chemo and get their period back). You have been smacked a triple whammy on top of known bone degeneration (you did mention prior existing neck and spine problems). Pain is no fun at all and it needs to get addressed. If the thought of mets is also strong on your mind, get scans done to knock that out of the ballpark (sometimes no matter what any doctor, nurse or friend says - you still can't shake that nagging feeling). However, I don't think mets are your problem but you do have a problem that you have to solve so you can move on pain free. __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"