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Old 11-01-2013, 01:20 PM   #11
Rolepaul
Senior Member
 
Join Date: Jan 2012
Location: Boulder Colorado as of January 2013
Posts: 389
Re: whole brain radiation

Talk to Amal Melhem-Bertrandt at MD Anderson in the Breast Cancer center. She is the person treating my wife Nina. Nina is 4 years to the good since Brain lesion was discovered and nearly two years to the good since spinal involvement was discovered. I would ask for Topotecan and IT Pertuzumab (40 mg weekly for four weeks, then 80-100 mg weekly after that). USC in LA was supposed to run a clinical trial at that dose, but there is some hold up. If not, use Herceptin instead of Pertuzumab. Results have been really good so far. Ask for Compassionate Care use to get around some government regulatory issues that could delay treatment. Private E-mail back if you want more info.
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