View Single Post
Old 12-23-2016, 04:01 PM   #67
Mtngrl
Senior Member
 
Mtngrl's Avatar
 
Join Date: May 2011
Location: Denver, CO
Posts: 1,427
Re: Boosting Your Immune System - share your ideas

"Immune system" sounds like there's a discrete physical entity that one can tinker with and fine tune. Maybe it can be "boosted" with additives, kind of like those special fuel boosters they sell at some gas stations.

But actual, biological immunity and immune responses are complex, and they are affected by many things, including diet, rest, attitudes, beliefs, and the like. To me, just about everything I do is intended to support my ability to heal and my overall health and vitality--so I guess you could say I'm always trying to boost my immune system. Also, don't forget that there are autoimmune diseases, like type 1 diabetes, rheumatoid arthritis, gout, etc. The immune system can be an enemy if overstimulated or if it goes haywire.

I'm pretty sure it's a bad idea to conclude that just because a certain mushroom or supplement or tea had some kind of effect on cancer cells in a petri dish, that I should ingest a large amount of that stuff.

On the other hand, I'm pretty comfortable with having a colorful, fresh, unprocessed, mostly-plant-based diet with lots of herbs and spices. For one thing, it's delicious, and pleasure supports wellness. For another, there are epidemiological studies that show certain populations tend to be healthier than others. I figure it can't hurt to add turmeric, ginger, pepper, etc. to what I'm eating, or to eat foods like curry that use those seasonings.

I think one of the most under-appreciated factors affecting ability to heal is stress, and I think the people who are most vulnerable to stress are the ones who have issues with past trauma. Not to mention, of course, that having cancer, and being treated for it, are traumatic in and of themselves. Meditation, breathing, yoga, massage, psychotherapy, guided imagery and other practices can actually help rewire the brains of trauma survivors and help them heal from the chronic "fight/flight/freeze" limbic overload that increases the levels of hormones that cause inflammation and interfere with healing. Our minds, bodies, and emotions are intimately connected. For optimal health, we need to train our minds and bodies.

Most supplements are probably no more effective than placebos, but the placebo effect is a real effect. It's healing. I don't knock it.

I'm pretty sure the main reason I'm still alive and still fairly healthy 68 months after my stage 4 diagnosis is I've been getting drugs that have been scientifically proven to have anti-cancer effects. No amount of "boosting my immune system" would have done that. But I do what I can to enlist my own personal resources as well. For me it's more about emotional sobriety, having a focus outside myself, eating well, and being mindful than it is about any particular regimen of diet, exercise, supplements, etc. One of the things I'm trying to heal from is a tendency to over-plan and over-effort.

I'm trying to have the best life I can have in the time I have left, no matter how much time that is. My goal is not longevity per se but meaning. To me that means experiencing loving relationships, with myself, other people, and God.
__________________
Amy
_____________________________
4/19/11 Diagnosed invasive ductal carcinoma in left breast; 2.3 cm tumor, 1 axillary lymph node, weakly ER+, HER2+++
4/29/11 CT scan shows suspicious lesions on liver and lungs
5/17/11 liver biopsy
5/24/11 liver met confirmed--Stage IV at diagnosis
5/27/11 Begin weekly Taxol & Herceptin for 3 months (standard of care at the time of my DX)
7/18/11 Switch to weekly Abraxane & Herceptin due to Taxol allergy
8/29/11 CT scan shows no new lesions & old lesions shrinking
9/27/11 Finish Abraxane. Start Herceptin every 3 weeks. Begin taking Arimidex
10/17/11--Brain MRI--No Brain mets
12/5/11 PET scan--Almost NED
5/15/12 PET scan shows progression-breast/chest/spine (one vertebra)
5/22/12 Stop taking Arimidex; stay on Herceptin
6/11/12 Started Tykerb and Herceptin on clinical trial (w/no chemo)
9/24/12 CT scan--No new mets. Everything stable.
3/11/13 CT Scan--two small new possible mets and odd looking area in left lung getting larger.
4/2/13--Biopsy of suspicious area in lower left lung. Mets to lung confirmed.
4/30/13 Begin Kadcyla/TDM-1
8/16/13 PET scan "mixed," with some areas of increased uptake, but also some definite improvement, so I'll stay on TDM-1/Kadcyla.
11/11/13 Finally get hormone receptor results from lung biopsy of 4/2/13. My cancer is no longer ER positive.
11/13/13 PET scan mixed results again. We're calling it "stable." Problems breathing on exertion.
2/18/14 PET scan shows a new lesion and newly active lymph node in chest, other progression. Bye bye TDM-1.
2/28/14 Begin Herceptin/Perjeta every 3 weeks.
6/8/14 PET "mixed," with no new lesions, and everything but lower lungs improving. My breathing is better.
8/18/14 PET "mixed" again. Upper lungs & one spine met stable, lower lungs less FDG avid, original tumor more avid, one lymph node in mediastinum more avid.
9/1/14 Begin taking Xeloda one week on, one week off. Will also stay on Herceptin and Perjeta every three weeks.
12/11/14 PET Scan--no new lesions, and everything looks better than it did.
3/20/15 PET Scan--no new lesions, but lower lung lesions larger and a bit more avid.
4/13/15 Increasing Xeloda dose to 10 days on, one week off.
7/1/15 Scan "mixed" again, but suggests continuing progression. Stop Xeloda. Substitute Abraxane every 3 weeks starting 7/13.
10/28/15 PET scan shows dramatic improvement everywhere. All lesions except lower lungs have resolved; lower lungs noticeably improved.
12/18/15 Last Abraxane. Continue on Herceptin and Perjeta alone beginning 1/8/16.
1/27/16 PET scan shows cancer is stable.
5/11/16 PET scan shows uptake in some areas that were resolved on the last two scans.
6/3/16 Begin Kadcyla and Tykerb combination
6/5 - 6/23 Horrible diarrhea from K&T together. Got pneumonia.
7/15/16 Begin Kadcyla only every 3 weeks.
9/6/16 Begin radiation therapy on right lung lesion that caused the pneumonia.
10/3/16 Last of 12 radiation treatments to right lung.
11/4/16 Huffing and puffing, low O2, high heart rate, on tiniest bit of exertion. Diagnosed as radiation pneumonitis. Treated with Prednisone.
11/11/16 PET scan shows significant improvement to radiated part of right lung BUT a bunch of new lung lesions, and the bone met is getting worse.
11/22/16 Begin Eribulin and Herceptin. H every 3 weeks. E two weeks on, one week off.
3/6/17 Scan shows progression in lungs. Bone met a little better.
3/23/17 Lung biopsy. Tumor sampled is ER-, PR+ (5%), HER2+++. Getting Herceptin and Perjeta as a maintenance treatment.
5/31/17 Port placement
6/1/17 Start Navelbine & Tykerb
Mtngrl is offline   Reply With Quote