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Old 05-01-2012, 05:17 PM   #14
Vicki revised
Senior Member
 
Join Date: Mar 2012
Location: Alabama
Posts: 121
Re: Herceptin - 52 weeks? Neuropathy?

Postscript: I have been on Herceptin for over a year now. The original plan was 1-2 yrs, if tolerated, depending on disease progression. Currently, based on the specifics of my disease I am scheduled to stay on Herceptin (either alone or combo'ed with other) as long as I can tolerate it, optimally the rest of my life unless something new and more appropriate comes out.

While all of our cases are unique, anything less than 52 weeks of Herceptin, if tolerated, is not indicated.
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Vicki
Lord, give me the comfort of Your embrace and acceptance of Your will.

3/11: DX: IDC, HER2++, ER/PR neg, stage 4, mets to liver. Primary tumor: grade 3; 11 cm. 2nd smaller tumor: ~2.5cm. Multiple affected nodes, 1 spot on liver. 6 rounds TCH prior to bmx.
7/11: Nothing left except Primary breast tumor now 1.5cm.
8/11: BMX, 17/17 nodes clear. No post-op chemo or radiation indicated. NED!
10/11: NED! Continue Herceptin indef.
2/12: Reoccurence of liver mets; both lobes. Tykerb added to Herceptin.
5/12: Progression of liver mets. Stop Tykerb, start Abraxane & Herceptin weekly.
8/12: Progression in liver and lymph nodes around liver and right kidney. Herceptin not working anymore! Stop Abraxane and Herceptin. Start Tykerb and Xeloda.
10/12: Severe side effects. 3 weeks break from everything.
12/12: It's working! All tumors gone except 2 (from 20+) Continue Tykerb and Xeloda. Brain and spine MRIs clear.
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