HER2 Support Group Forums - View Single Post - SoCalGal feeling So-so

agness · 02-24-2016, 04:46 AM

Sending hugs. I'm so sorry to read of your pain.

My only thoughts are maybe craniosacral massage to the surrounding areas can open things up to keep tissues flowing and moving. I have been doing craniosacral massage weekly, focused on the rads treated area at the back of my head. My neuro-onc commented last week that she was surprised I didn't have more swelling as the posterior fossa cavity is such a contained space. I told her that I heard her concerns and so I added external therapeutic massage. I can only suppose that the support was helpful. An osteopath might be an alternate practitioner who can help with this.

The other idea is that maybe acupuncture might help. I fell going down the stairs to let my car out early one morning and deactivated a whiplash injury to my spine that was really painful. I happened to be going for weekly acupuncture at the time for infertility related stuff. When I told him what I was dealing with he did some needle work in my mid back and the pain went away. I still needed chiropractic care but the acupuncture worked better than aspirin at reducing the inflamed painful feeling.

I hope these ideas are helpful to you. Keep us posted on your recovery.

Ann

02-24-2016, 04:46 AM	#3
agness Senior Member Join Date: Aug 2014 Location: Seattle, WA Posts: 285	Re: SoCalGal feeling So-so Sending hugs. I'm so sorry to read of your pain. My only thoughts are maybe craniosacral massage to the surrounding areas can open things up to keep tissues flowing and moving. I have been doing craniosacral massage weekly, focused on the rads treated area at the back of my head. My neuro-onc commented last week that she was surprised I didn't have more swelling as the posterior fossa cavity is such a contained space. I told her that I heard her concerns and so I added external therapeutic massage. I can only suppose that the support was helpful. An osteopath might be an alternate practitioner who can help with this. The other idea is that maybe acupuncture might help. I fell going down the stairs to let my car out early one morning and deactivated a whiplash injury to my spine that was really painful. I happened to be going for weekly acupuncture at the time for infertility related stuff. When I told him what I was dealing with he did some needle work in my mid back and the pain went away. I still needed chiropractic care but the acupuncture worked better than aspirin at reducing the inflamed painful feeling. I hope these ideas are helpful to you. Keep us posted on your recovery. Ann __________________ Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall. Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy. 7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED. 10/27/15 atypical uptake in right cerebellum - inflammation? 12/1/15 Leptomeningeal dx. Starting IT Herceptin. 1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly 3/2016 - stable scan 5/2016 stable scan 7/2016 pseudoprogression? 9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT 11/2016 Cyberknife to temporal lobe, HBOT just prior 12/2016 - lesions starting to show shrinkage 8/2017 - Stable since Dec 2016. Temporal lobe lesion gone. Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing. Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for.